A note from Jason…
(Posted Friday, August 8 on FBC’s Website)
Hello Friends of Katherine,
Thank you for your thoughts and prayers yesterday, the procedure went well. Katherine had collagen injected into her throat to plump up her right vocal cord which is not working properly (this will effectively help close off her airway when she swallows and prevent anything from getting down into her lungs). The doctors also determined that the right side of Katherine’s soft palate and right side of her tongue, lips, mouth, face, etc. are not functioning (due to the necessary cutting of her 7th intercranial nerve during her surgery). This is not new news; however, the lack of function in those areas will continue to affect her ability to talk until they hopefully (and miraculously) return. She will likely be fitted with a retainer-like device that will help to lift the right side of her soft palate to help her speak better.
She did not fully pass the swallowing test, though there is the beginning of a swallow (the laryngeal part, which is first, as well as back of the tongue movement, just not the pharyngeal part, which completes the swallow down into the esophagus); therefore, she will remain on the G-tube until she regains that function. We will return back to the ENT doctor in 3 months to try the test again. Again, this was not completely unexpected (directly after her surgery, Dr. Gonzalez noted that there would likely be issues with her swallowing; now we understand it was because the 9th and 10th intercranial nerves were partially cut during the surgery), but it was very difficult to officially hear this news from a doctor, especially because Katherine really thought she was able to effectively swallow (and was hoping to eat, drink, etc. very soon, which now will not be the case). The speech therapists will now specifically focus their efforts on retraining and strengthening the swallowing muscles in hopes that she can regain some or all of that function in the near future. It remains to be seen how these recent developments will influence our next steps after UCLA’s Acute Rehab (we should know more after the team conference this Wednesday).
The ENT doctor did say that up to 3 months after a brain injury like this the intercranial nerves that were damaged will have retracted but in these next 6 months (between the 3rd and 9th month after surgery) those nerves will start the slow process of regrowing and hopefully regaining the lost functions. Needless to say fully cut nerves are more difficult and near impossible to regenerate (ie. her 6th and 7th intercranial nerves, right auditory nerve–which controls hearing and balance–and right facial nerves) but we’ll see what the Lord will do! Even partially cut nerves (i.e. 9th and 10th intercranial nerves, essentially swallowing) may not be able to fully regenerate or perform the same function, but the next 6 months should be a time of continuing, miraculous improvements.
Dr. Gonzalez came by yesterday and saw Katherine up and doing physical therapy. They even had a conversation. He reiterated that her progress is beyond all belief. He honestly did not expect her to ever wake up after the surgery, so to see her moving around, sitting up, and talking brings tears to his eyes. He says that in the coming months, he anticipates her progress to be so great that she will seem like a different person from where she is now. We are so thankful for his perspectives and thoughts on Katherine’s recovery. It always helps us to remember how far the Lord has allowed Katherine to come.
104 days after Katherine’s surgery, we still remain so hopeful and grateful, though this situation is not without it’s great burdens, emotionally, mentally, physically, etc. The Lord has done so much for Katherine, yet it seems like every day we (particularly Katherine) face really horrible things that push us to the limits of our faith and trust in the Lord and his plan for us, but we hang on to the Lord’s promises and try to move forward. Prayers for our next step after UCLA’s Acute Rehab would be much appreciated. I feel great pressure to decide where we need to go next, whether home (to the new Westwood apartment) or to another facility, whether in the LA area or back South. There are lots of options and lots of different (and often conflicting) opinions on what would be best for Katherine, so we need the Lord’s wisdom and clarity of direction to see where we need to be next.
Thanks for everything! We love you all.
God Bless,
Jay